Jakob disease information and help. vcjd

Christines Blog (Archive Blogs 1a)

Thursday 27th January 2011

Sent: Tuesday, January 11, 2011 8:26 PM - Subject: SCOURGING ANGEL

Dear Mr.Gummer,

So here we have a book about a deadly disease that plagued the United Kingdom many centuries ago written by the son of a man who told us that contaminated BSE diseased ridden beef was safe to eat. Today we witness the devastating consequences of decisions made by individuals in positions of power, we witness the modern day plague "the human form of mad cow disease (vCJD)". The Scourging Angel

How insensitive of you to write this book about an incurable disease, do you not realise that people are dying from the human form of mad cow disease in this country and that millions of us have been exposed to vCJD, here is a modern day quote from the Guardian magazine 2001:

"BSE IS PROBABLY THE MOST CYNICAL ACT OF BIOLOGICAL WARFARE EVER WAGED AGAINST A CIVILIAN POPULATION BY A WESTERN GOVERNMENT, THE BRITISH GOVERNMENT PUT THE NARROW MINDED BUSINESS INTERESTS OF ITS FARMING AND MEAT INDUSTRIES BEFORE THE HEALTH OF ITS OWN POPULATION"

Today there is a cure for the black death but not for the human form of mad cow disease, perhaps you should consider writing a book about vCJD a current incurable disease that the vast majority of us have been exposed to I am sure you would receive plenty of support from your father.

Yours disgusted,

Mrs Norma T , West Susssex

With this blog are just a few of the many, letters and emails that myself and Benedict Gummer has received over the cruel and insensitive publication of his book. (see above and below and right the jacket cover ‘The Scourging Angel’).

Benedict Gummer son of John (Gummer Minister of Agriculture during BSE scandal) has written a book called ‘The Scourging Angel’ about the plague and how it wiped out a quarter of the UK population, his promotional blurbs describe how ‘ a lethal pathogen incubated in people silently’ …..This is the son of John Gummer who as UK Minister allowed and unleashed the lethal pathogen BSE/vCJD a plague of potential biblical proportions exposing millions of innocent babies, children and people in the UK and throughout the global community. Andrews last days

Benedict Gummer (32) was elected as Conservative MP last year for Ipswich. His seat was secured by his father’s wealth, influence and by the support of Kenneth Clarke (Health Minister who allowed BSE infected material into baby food, school meals, and vaccines). Lord Chancellor Kenneth Clarke who is also a member of the Prime Ministers Cabinet travelled to Ipswich and met with wealthy landowners, businessmen during Benedict Gummers electioneering. Many meetings behind closed doors with the help of the ‘old boy network’ helped to secure Ben Gummers seat. Prime Minister David Cameron’s political career is supported and funded by Peter Gummer (brother of John) who now resides in the House of Lords.

John Gummer has also been rewarded for his lies and corruption as he too now resides with his brother Peter in the House of Lords where they continue via the old Tory mafia to have influence on Government Policy and the Law. They also use this influence to prevent and to try and block any investigations into BSE/vCJD.

‘GOVERNMENT RUN BY THE RICH FOR THE RICH’…..

One of the letters to Benedict Gummer below was written by a heartbroken mum Sandra from Birmingham who lost her 28 year old son to vCJD…..….

Dear Christine

I believe this is a perfect example of how disconnected the elitists are from
the real world. As an MP and a young man in his 30's, Benedict Gummer couldn't
find anything more relevant in today's world like perhaps the cholera outbreak
in Haiti to write about? I doubt even Cambridge wants to be linked to a higher
education that can't leave a better mark on the world than that.

As an American, it is really difficult for me to see how he can even be
electable when he prefers to be a teacher of past history rather than a student
and leader of today's health problems...many of which his father lent a strong
hand in creating. Our Congress is not much better but at least the turnovers and
upsets in recent elections show just how unhappy the American public is with the
disconnected power elite.

This book is in extremely poor taste but what more would you expect from the
progeny of someone who gave such a chilling interview and insight into a dark
core--- someone who left the world with an indelible picture of himself force
feeding a hot hamburger to his own child.

Perhaps the younger Gummer can show the world and his constituents how serious
he is about serving them by ensuring that all of the royalties go to funding the
healthcare costs of those stricken by diseases... the plague itself
is now a rare disease. Theresa USA

Friday 21st January 2011

Many people have contacted me regarding this latest research below, see link and report. This study revealed that mice subjected to rogue prions via aerosols developed cjd after ‘breathing in the lethal pathogen’. Breathing in any toxic material is a fast track to the brain and would be a clear and quick path for the rogue prions that cause vCJD to enter the human body. That is without question, but my concern is that this is not new information or knowledge.

Dr Aguzzi from University Hospital Zurich and his team continue to produce ground breaking research into prion disease; I applaud and admire their hard work and tenacity. In Switzerland there has been a huge increase in sporadic cjd and expert scientists in the country believe this is due to exposure to BSE infected material.

This ‘new’ research regarding inhalation suggests that vegetarian victims of vcjd couldn’t possibly have become infected orally and so it must be some other route. My Andrew didn’t eat any beef or beef products from the age of six years old, but what he did receive in common with all victims of vCJD was his vaccines.

Has this new research regarding the ‘breathing in lethal pathogens’ by Dr Aguzzi moved onwards from the information already within the public domain and scientific community? (See comments below) I don’t doubt the integrity of Dr Adriano Aguzzi and his team and remain open to everything they have to tell us, but this paper has told me nothing I didn’t already know. We know that abattoir workers, farmers, farmers wives have died of vCJD and of course sporadic form of the disease too. We also know of Linda a mum of six, a worker at the Tyson slaughter factory in Texas, USA who recently died of cjd her family convinced it was Vcjd due to her handling and killing cattle. The risks to workers in this field are high but once again this knowledge is already in the public and scientific domain.

My concern is that I am seeing and reading more and more published papers especially those backed by the UK government that are re-workings of information already gathered or out there. I know specific research into vCJD here in the UK is manipulated and planned by the Department of Health and Whitehall, to conceal rather than reveal. Funding is given to all sorts of weird and odd areas and I believe this is to muddy the waters. By increasing the possible sources and avenues of infection it makes is harder to prove and pin down the real culprit.

I read comments all the time from the UK CJD unit about prion disease and especially vCJD that are re hashed and nothing new, some of these quotes that appear in the media, so called new research is paraphrased from statements made several years ago and yet we are told research into cjd and vcjd is ongoing and current? I have attended lectures here in the UK given by the world experts in prion disease and listen to the same information, again and again………what is happening here? Some of these lectures are years apart and yet I learn nothing new and hear nothing new? Yet these scientists are working away apparently 24/7 looking for answers, cures and treatments? I know there is a lot of information that is being kept secret and that these scientists working for the UK department of health know a great deal more than they are being allowed to reveal to the public.

The first officially recorded case of BSE was over 27 years ago, the first official recognised victim of vcjd 16 years ago and yet the public is still not being told the truth about the specific source of the infection.the numbers that are probably carrying the disease and the threat to future generations.

So I am perplexed at this latest research? As a member of the concerned public as a mum who lost her only son to vCJD. Is this latest information that scientists have presented re aerosols…a new discovery that will help victims, treatments, cures or just another way of recycling old information in a new format? Surely this research highlights the shabby and dangerous way the UK government disposed of the million BSE infected carcasses. BSE infected cattle were burnt and buried in landfill sites across the UK, what happened to that ash? Did it fall on local houses, fields or schools, what happens to the still infectious remains of those BSE diseased animals as they degrade into the very earth in which vegetables and other food sources are obtained?

And why are young people still dying of vCJD 22 years after the SBO ban when specified bovine offal was banned from the human food and medicine chain? Surely these questions should be answered?

I remain open to all theories but there seems to be a lot of overlapping and unnecessary duplicating of research taking place within prion research that is helping to contain its secrets not reveal. Why is this happening and who is sanctioning the funding? Whose interests is it serving? The public or government? We face further victims of vCJD over the next decades, perhaps hundreds, thousands, tens of thousands of victims ....no one knows the true numbers…but for sure more innocent people will die…..

'one in a thousand of the UK population is probably carrying vcjd’ BBC1 May 2008 Prof John Collinge’

Over 16 years ago it was known that rogue prions could be inhaled and cause cjd. In the book ‘Deadly Feasts Tracking the secrets of a new and terrifying plague’ author Richard Rhodes (1997) ( ISBN 0-684-82360-8) talks about inhaling rogue prions on page 242. Highlighted by a quote from the UKs Daily Telegraph April 4^th 1996, that stated

‘Gardeners have been reminded by the Royal Horticulture Society to wear gloves and dust excluding masks to avoid any risks of BSE when applying spring dressing of blood and bone-meal to roses and shrubs’

This mixture used in gardens was extracted from BSE infected cattle and it was found that gardeners had succumbed to cjd after inhaling these products.

As early as 1995 leading expert in CJD Professor Carleton Gajduesk warned the author Rhodes not to use ‘ blood or bone meal on your roses.’ Because of the risk to his health of developing cjd if he inhaled the dust or handled the material.

http://www.lifesciencesworld.com/news/view/170199

LIFE SCIENCE News

Aerosols transmit prions to mice, causing disease

(posted on 13/01/2011)

Contact: Adriano Aguzzi
adriano.aguzzi@usz.ch
Public Library of Science

Scientists at the University of Zurich (Switzerland) and the Federal Research Institute for Animal Health (FLI; Tuebingen) have challenged the notion that airborne prions are innocuous.Details of how inhalation of prion-tainted aerosols induced disease are published January 13 in the open-access journal PLoS Pathogens.

It is known that prions can be transmitted through contaminated surgical instruments and, more rarely, through blood transfusions. However, prions are not generally considered to be airborne - in contrast to many viruses such as influenza and chicken pox.

In the new study, the authors housed immunodeficient and immunocompetent mice in special inhalation chambers and exposed them to prion-containing aerosols, which induced disease. Exposure to aerosols for one minute was sufficient to induce disease in 100% of mice. The longer the exposure, the shorter the incubation time in the recipient mice, after which they developed the clinical signs of a prion disease. These findings indicate that prions are airborne. Prions appeared to transfer from the airways and colonize the brain directly, since various immune system defects - known from previous experiments to prevent the passage of prions from the gut to the brain - did not prevent infection.

The prion is the infectious agent that caused the epidemic of “mad cow” disease, also termed bovine spongiform encephalopathy (BSE). BSE claimed the life of more than 280,000 cows in the past decades. Transmission of BSE to humans, e.g. by ingestion of food derived from BSE-infected cows, causes variant Creutzfeldt-Jakob disease which is characterized by a progressive and invariably lethal breakdown of brain cells. Consumption of food made from BSE-infected cows has caused the deaths of almost 300 people.

The precautionary measures against prion infections in scientific laboratories, abattoirs, and animal feed factories have not typically included stringent protection against aerosols. These new findings suggest that it may be advisable to consider the possibility of airborne prion transmission, and to create regulations aimed at minimizing the prion infection risks to humans and animals.

###

FINANCIAL DISCLOSURE: This work was supported in part by EU grants ANTEPRION and PRIORITY (LS), and the TSE-Forschungsprogramm des Landes Baden-Wuerttemberg, Germany (LS). This work was also supported by grants from the UK Department of Environment, Food and Rural Affairs (AA), the EU grants LUPAS and PRIORITY (AA), the Novartis Research Foundation (AA), and an Advanced Grant of the European Research Council to AA. MH was supported by the Foundation for Research at the Medical Faculty, the Prof. Dr. Max-Cloetta foundation and the Bonizzi-Theler Foundation. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.

COMPETING INTERESTS: The authors have declared that no competing interests exist.

PLEASE ADD THIS LINK TO THE PUBLISHED ARTICLE IN ONLINE VERSIONS OF YOUR REPORT: http://dx.plos.org/10.1371/journal.ppat.1001257 (link will go live upon embargo lift)

CITATION: Haybaeck J, Heikenwalder M, Klevenz B, Schwarz P, Margalith I, et al. (2011) Aerosols Transmit Prions to Immunocompetent and Immunodeficient Mice. PLoS Pathog 7(1): e1001257. doi:10.1371/journal.ppat.1001257

PRESS-ONLY PDF: http://www.plos.org/press/plpa-07-01-13-aguzzi.pdf

CONTACT:

Adriano Aguzzi: adriano.aguzzi@usz.ch

Saturday 15th January 2011

My thoughts are with the family of this latest victim of vCJD a 44 year old Italian woman. (see press link below).

Food and medicine products were exported throughout Europe and our global communities throughout the BSE scandal, many of the deaths abroad are due to these exports of toxic BSE food, medicines, cattle/cattle feed , or the victims visiting, working or living in the UK.

It would appear across Europe that a similar pattern of deaths are emerging. In the UK when the first officially recognised deaths of victims of vCJD were recorded although they were predominately in their teens and early twenties there was also a victims from in their thirties, forties, fifties and older. Sine 2007 victims of vCJD, officially recognised by the UK Department of Health seem to have become almost exclusively young people in their late teens or early twenties.

I fear the death of this 44 year old may now herald a similar pattern and this also highlights with the regular and ongoing deaths of young people in the UK that our babies and children were exposed to BSE infected material for much longer and on a increasingly toxic basis. Experts blames school meals, baby food and vaccines being a probable source of the infection….but this also points that the youngsters succumbing to vCJDin the 21^st century were exposed to the lethal pathogen much later…..and from probably the same specific source.

I fear that this 44 year old woman dying of vCJD in Italy heralds an ongoing wave of many more victims across Europe ….over the coming decades and years….…..

http://www.ansa.it/web/notizie/rubriche/english/2011/01/06/visualizza_new.html_1643876564.html
Second Italian dies of human mad cow disease
Livorno woman follows Sicilian woman in 2003
06 January, 14:19

(ANSA) - Livorno, January 6 - Italy on Thursday saw its second death from the human variant of mad cow disease, a Livorno hospice for the dying reported Wednesday.

The 44-year-old woman from Livorno was admitted to the hospice in July in the final stages of her battle against variant Creutzfeldt-Jakob disease (vCJD), the human form of the fatal brain-wasting illness.

Italy's first case, a Sicilian woman, died in 2003 after struggling with vCJD for about a year.

The variant of CJD, for which there is no known cure, is believed to be caused by eating meat infected with mad cow disease or BSE (bovine spongiform encephalopathy).

There have been 275 cases of vCJD worldwide over the last decade, including 170 in Britain, the worst-affected country, 56 in Israel, and 25 in France.

Almost 190,000 cattle have died from the bovine form in the same period, the vast majority in the UK.

A massive cull in Britain prevented the spread of the disease but isolated cases are still reported.

EU restrictions on people eating beef-off-the-bone and offal were lifted in 2006 as the 'mad cow' crisis was declared officially over.

http://www.ngnews.ca/Canada---World/Business/2011-01-06/article-2095065/Womans-death-in-northern-Italy-is-nations-2nd-fatal-case-of-mad-cow-disease%3B/1
Woman's death in northern Italy is nation's 2nd fatal case of mad cow disease;
ROME - A hospital in northern Italy says an Italian woman has died of mad cow disease, the nation's second victim of the brain-wasting illness.

The woman, in her mid-40s, had been in Livorno hospital since July for treatment of variant Creutzfeldt-Jakob disease, as the illness is formally known. Italy's first victim of it was a Sicilian woman who died in 2002.
An Italian agriculture lobby, Coldiretti, is insisting Thursday that the latest death shouldn't scare meat consumers, since rigid controls of cows to be butchered have been in effect in Italy since 2001. Livorno hospital officials have said the woman probably contracted the illness in the 1990s. Experts believe the human form of the illness comes from eating meat of infected animals.

10th January 2011

BENEDICT GUMMER

The son of John Gummer has just published a book titled ‘SCOURGING ANGEL’.

Benedict Gummer Conservative MP for Ipswich was born in 1978, and received a wonderful education at Cambridge. Despite this advantage his attitude seems to be as arrogant as his father. The cruelty and insensitivity of Benedict and the Gummer family has heaped further distress onto grieving families who have lost and are losing their loved ones to vCJD. Andy at Talksport

Benedict Gummers subject is the ‘BLACK DEATH’ a plague that killed nearly a quarter of the UK population in the 14^th century, he describes in graphic detail the disease as its marched through the global community, its symptoms and devastating loss to families in villages and towns across UK.

I was given a copy of the book by a publishing agent who is also a supporter and friend of the campaign , I have read the book thoroughly, Benedict Gummers simple and rather flowery prose tells of the tragic and terrible human cost of the plague. Totally ignoring the fact that his own father has put millions of us at risk through a much more terrifying 21^st century plague. BSE and its lethal pathogen. vCJD….. There are now treatments for the Black Plague, vCJD always kills and there is no treatment. VCJD was and is a UK man made manufactured disease, avoidable and preventable, and it continues to kill especially young people on a regular basis.

As one of Benedict Gummers promo for ‘Scourging Angel ‘ states:

‘MEN DRIVEN MADE THROUGH GRIEF ROAM THE COUNTRYSIDE WHILE THE INVISIBLE CONTAGION INCUBATES WITHIN THEM’

Experts believe the incubation period from ingesting BSE infected material to developing vCJD could be as long or longer than 40 years. I was told my Andrew probably ate BSE infected material when he was young…..my Andrew too had an invisible pathogen incubating in his young body….an avoidable disease that John Gummer and his Government created, allowed and condoned into the human food and medicine chain.

Millions of us in the UK could be incubating vCJD, the appalling publication of Benedict Gummers ‘ Scourging Angel’ has shocked, saddened and angered all families who have lost loved ones to vCJD and also slighted the millions of people in the UK who have been unwittingly exposed to BSE.

Dean Burrell aged 25 who was born in the same area as the Gummer family have their country estate, died of vCJD last summer. His Mother is totally heartbroken and devastated by the publication of the book. Andrews Headstone

Benedict Gummer his siblings, his father John and mother Penelope received and continue to enjoy a luxurious lifestyle founded on the BSE scandal, its greed lies and corruption which killed my only son and so many innocent people. Even now John Gummer profits from talking and chairing various companies, groups and farming organizations, whilst victims of vCJD struggle to be heard and recognised. Here is just one of the many payments that John Gummer receives for speech making, sitting on companies and generally making money for doing very little….....23 February 2010, received payment of £1,500 from Robert Brett & Sons Limited, Robert Brett House, Milton Manor Farm, Ashford Road, Kent CT4 7PP, for speaking engagement. Hours: 4 hrs.

No doubt Benedict Gummer also received a large advance fee for his book ‘SCOURGING ANGEL’ and will profit from the sale of his book…...

As a representative of Justice for Andy as my only sons voice as the voice of parents, siblings, grandparents family and friends of those that have lost loved ones to vCJD, we are appalled that this book has ever seen the light of day let alone be published.

Perhaps Benedict Gummer would like to donate his huge advance and all profits to a charity instead of the Gummers once again profiting from others misfortune and horrific deaths…?….

Tuesday 4th January 2011

With this blog are photos of just a few of the victims of vCJD whose lives were wrecked and unlawfully stolen. On 12^th November 2010 to mark International CJD day families and myself from across the UK and our global community delivered a petition to David Cameron and also personal letters addressed to him regarding our losses. The petition contained many evidence backed questions and challenges none of which have received a response.

Jorawar It is now 51 days and David Cameron the UK Prime Minister has not had the decency to personally reply to the tear stained letters from families affected by vCJD. These came from members of the Sikh, Hindu, Jewish, Christian and our multi faith and cultural global communities all of which were represented within the petition and its letters.

Many of the personal letters were heartbroken and very personal accounts of parents nursing their child dying with vCJD, appealing to David Dean Cameron as a father who has also lost a child…..

Andy David Cameron and his Conservative led cabinet….continue by their resounding silence to treat victims of vCJD with contempt, lack of respect hoping that we will be silenced and will go away. It’s the same contempt that was and is fostered by the Lord Chancellor Kenneth Clarke and the old guard Tories that were responsible for BSE.

Millions across the UK and the global community have been exposed to BSE infected material and its lethal pathogen vCJD……whilst David Cameron and his Conservative led government block the campaign and its supporters they are ignoring the millions of us across the UK and the global community who have also been exposed to BSE infected material. Everyone over 13 years old in the UK has eaten at least 50 BSE infected meals….…. Grant

Since I delivered the petition and letters on 12^th November 2010 to mark International CJD day I have watched with mounting distaste as our UK Prime Minister David Cameron and his officials attend celebrity bashes, Christmas/New Year drinks parties and lunches mixing with bankers and those that are lining their pockets during the recession. Meanwhile a letter and plea from a mum who lost her only daughter to vCJD and many more remain sidelined, forgotten. I have sources who tell me of countless semi secret government official back slapping expensive dinners and lunches in which deals are made, in which the ordinary man and woman in the street are ridiculed and their interests sidelined for shareholders and corporations that increasingly line the pockets of the rich Conservative fraternity.

Edward With this blog are photos of just SOME of those who have been unlawfully killed by vCJD…. Billy

As a new year dawns families across the UK including David Cameron’s, John Gummer and Kenneth Clarkes look forward to a new year of possibilities and experiences….for my son and all victims of vCJD there is no new year, new day, as they lay in cold graves far removed from the lives they had and should have had and lived………….

PHOTOS OF Grant Goodwin died aged 30, Andrew Black died aged 24, Dean Burrell Died aged 25, Edward Peduzie died aged 26, Billy Smith Died aged 21….Kate Richer aged 22 and Jorawar Gill aged 18.

Friday 24th December 2010

The holiday season is a time for being with our families and friends relaxing in their company, sharing, caring, making memories and laughter. Whatever our religious beliefs or faith this time of year gives families and friends the opportunity to stop work and spend precious time together.

Across the UK and our global communities for families nursing victims of vCJD and those affected by the disease this time of year has a terrible poignancy and heartbreak. With this blog is a photo of one of the current victims here in the UK 23 year old Irhad Durakovic and his devoted mother Indira.

I recently visited them at their home in London, Irhad was a graduate at Thames Valley University, had a private pilots licence, was an air cadet and was hoping for a job in the aviation industry. At 6ft 4inches tall, healthy, handsome, musical and talented he had a wonderful career and life ahead, his mother showed me proudly his awards and talked about her intelligent and loving son.

Irhad arrived in the UK late 1992 with his mum, fleeing the war in Sarajevo…for peace and a better life. Instead Irhad ingested BSE material from our food and medicine chain and now he is bed bound, cant talk, is fed by a tube and is nursed devotedly by his mother 24/7.

As Indira told me ‘ The Uk Government is killing my son, food and medicine should have been safe. I cared for my son made sure he ate wisely he is my world ‘ she continued’ I want those responsible punished…why has this never happened?

The war in Bosnia killed my only brother, Irhad and I were afraid for our lives…we escaped shelling, bullets and at times it was very frightening….but I can honestly say watching and nursing my son these last months…..that vCJD is far far worse……’.

Indira is another heartbroken mum……whose son’s life has been wrecked and stolen…

There will be no more happy holidays for Irhad or Indira …….

Saturday 18th December 2010

Below are the links to a documentary titled ‘Kuru’ which will broadcast across Australia on Sunday 19^th December 2010 at 8:30pm. I have just watched a pre view copy.

Working closely with director Rob Bygot and his team, I provided Siamese Productions with resources, research and footage. It’s the story of a young medical scientist called Michael Alpers who has dedicated his life to find out why generations of the Fore Tribe in Papa New Guinea died of a horrific brain wasting disease known as the ‘shivering sickness’ or Kuru. The disease was specific to this tribe. Over a time span of 50 years individuals from this group of people have died particularly young children and women. It was discovered Kuru was due to the tribe cannibalising their loved ones after death, this practice was outlawed in 1959.

http://www.kuru-doco.com/
http://www.youtube.com/watch?v=nyJucxa75rQ

Professor Michael Alpers from Adelaide, Australia tracked the tribe as its numbers were devastated by a terrible neurological disease that couldn’t at first be identified or understood. Over decades Michael Alpers lived, filmed and worked with the Fore Tribe and a team of researchers to get to the truth and answers which have repercussions for the whole of mankind.

During the programme Michael states ‘ We concluded that Kuru and cjd were the same kind of disease’ Professor Alpers injected brain material from a 11 year old girl called Kigea who died of Kuru in 1966 into to two chimpanzees. Less than 2 years later, the Chimps developed all the symptoms of CJD. This ground breaking experiment which showed that ‘The disease could be transmitted and that the implications of this positive transmission could be immense‘, took place. 15 years before BSE. UK Scientists and Whitehall knew for years that if infected brains or spinal cord were fed to humans it would result in the horrific brain wasting disease CJD..

Yet throughout the 1980s and 1990s scientists and officials in the UK government told us the UK public that is was ok to feed cattle their own diseased brains and spinal cords and then for over a million BSE infected cattle to be allowed into the human food and medicine chain.

After his 1966 experiment Alpers stated ‘It was significant with public health issues. A totally new human disease had been discovered’.

Professor Michael Alpers and his team believe that victims that have so far died of vCJD are just ‘the tip of the iceberg’ . As humans developed vCJD through ingesting infected cattle the incubation periods could be as long as a hundred years. As Vcjd has been transmitted from cow to calf and mother to child this raises many worrying scenarios for generations that have not even been born.. Alpers foretells that the next wave of vCJD victims could be higher, wider and broader in its range of victims as different genotype and individuals succumb to Vcjd due to infected material they ingested many years previously.

Terrifyingly vCJD has developed into an even more lethal pathogen than Kuru. Michael Alpers adds ‘vCJD is not just a disease of the brain but it can also be found in victim’s lymph nodes, tonsils, spleen and blood’.

This raises huge concerns regarding public health issues and transmission. Especially if an individual is sub clinical (hasn’t yet developed symptoms of the disease) asymptomatic (carrying the disease but not ill) or incubating (infected with the disease but apparently well).

I like to thank Rob Bygott and his team for highlighting and raising awareness about vCJD with their excellent well produced and written documentary. Also for their support and understanding the terrible devastation it wrecks on victims and their families.

The Fore Tribe was devastated by Kuru…..I fear OUR so called civilised world could well be facing a similar scenario …

Thursday 16th December 2010

Three years ago today at 9.20pm my son Andrew died …gasping for air as his lungs rattled to get oxygen into his body…. this pain and horror went on for nearly four days as his young body fought to stay with his family, whilst his brain had been systematically destroyed by vCJD. My beautiful, handsome young son, whose long black eyelashes framed his violet eyes….opened his eyes at the point of death …and then he was gone…I held my son all day and night before he was taken to the chapel of rest.

After he died we dressed Andrew in his favourite pair of jeans and designer shirt, washed, brushed and styled his hair….which stood up in a curl on his forehead as it used to de when he was a little boy freshly washed and in his pyjamas after bath time.

My Andrew looked so young…not a line on his face, he still had spots on his chin ….…too young and not ready to die….especially so horrifically……

As the funeral directors took my son away, as they drove out of the street, taking my sons body with them…I cried and wailed liked a banshee……that is the reality of vCJD…….

…No more days of sunshine, holidays, Christmas, laughter, love or life for Andrew….. no more peace or happiness for me his mum

From the time Andrew became ill with vCJD till the day he died and ever since I have continued my investigations into ‘Who killed my son?’ and ‘What killed my son?’

Alongside this I have been grieving and continue to be totally heartbroken, there is no healing or respite when your only son has died of a totally avoidable disease, which was UK man made, manufactured, condoned and allowed by those named and shame on this website.

There is no respite when those responsible for his unlawful death frequent our TV screens, lauded, shaking hands with monarchs and other dignitaries, gaining ever more honours, wealth and powerful positions in the establishment. Their fat, self satisfied and often bloated corpulent figures dissipated by greed and good living…whilst my Andrew lies 6ft down in the cold earth……

There is no ‘moving on’ …..Ever….there is no forgetting the horror of Andrews death and dying…..there is no respite from the fact that those responsible have so far never been punished……There is no peace knowing that my son should still be alive that the disease was totally avoidable and that Andrew should have lived at least another 50 years of life with his family…

I buried my only son 4 days before Christmas the funeral service took place in the Cathedral were Andrew use to sing and take part in his schools nativity plays.

The nightmare never ends and my life is very very different and I can never be complete or the same again…..

From One Who Stays

How empty seems the town now you have gone!

A wilderness of sad streets, where gaunt walls

Hide nothing to desire; sunshine falls

Erey distorted, as it long had shone

On white, dead faces tombed in halls of stone.

The whir of motors, stricken through with calls

Of playing boys, floats up at intervals;

But all these noises blur to one long moan.

What quest is worth pursuing? And how strange

That other people still go accustomed ways!

A spectre- horde repeating without change.

An old routine. Alone I know the days

Are still-born, and the world stopped lacking you.

By Amy Lowell

Friday 10th November 2010

Kenneth Clarke has recently stood up in the House of Commons and as head of the Justice Department announced cuts to legal aid. Some of these cuts will affect negligence cases which includes medical injustices. I am not going to enter this debate but the moves of Kenneth Clarke and the increasingly right wing government is clear, those that are poor, vulnerable, disabled, in need and unable to defend themselves will have even less chance of seeking and getting justice.

Below this blog is a reply sent to Tommy Goodwin who lost his son Grant aged 30 to vCJD on 16^{th J}anuary 2009, from Kenneth Clarke. Its arrogant, unforgiving and pays merely lip service to a distressed and grieving dad. . Tommy has accused Kenneth Clarke of the unlawful death of his only son and the reply below is Kenneth Clarke’s brusque and as ever pompous reply. As usual that old chestnut the BSE inquiry is used by Clarke as his ‘GET OUT OF JAIL FREE CARD’….we know the inquiry was stage managed by the very people it was supposed to investigate. Lord Phillips never had the true picture of the corruption and cover-ups that have killed so many innocent UK and global citizens. Grant_Goodwin_aged_30_MV

Tommy Goodwin has been told despite Grants death certificate stating vCJD,. despite Lancet and many other papers published about his son’s condition by Professor Collinge and Professor Knight of the CJD unit Grant will never ever appear on any government statistics as a case of vCJD.

Professor Richard Knight has written a paper about Grant which he no doubt hopes will shore up his scientific career and on the same day told Tommy ‘ Grant will never go on the government official cjd stats for cases of vcjd’..The hypocrisy of this statement makes Tommy and my head spin…..

Despite Grants blood being used by the DOH for research into Vcjd and worth millions of pounds to UK government scientists… ….Grant Goodwin remains in limbo….his death due to vCJD not acknowledge by Whitehall, The Department Of Health or the UK Government . As it approaches the second anniversary of Grants untimely death his family remain completely distraught that not only has their beloved son died of vCJD but he is not recognised as a definite case of vCJD by the UK Government and its agencies.

As Grants tearful dad said to me ‘It was horrific to watch Grant die of a totally avoidable disease but now Westminster and the Department of Health want to make out as if my Grant never existed…lived or died….’ Tommy Goodwin continued ‘This is how figures for vCJD are being massaged and deliberately kept low to falsely reassure an unsuspecting public’. …

As you can see from the arrogance of Kenneth Clarke’s reply to a heartbroken dad, Clarke remains dismissive and lies not just about his involvement in the BSE/vCJD cover-up and corruption but the fact he has never received letters from other families and members of the public. I and many parents have written to Kenneth Clarke’s since his promotion to Lord Chancellor accusing him of lies and corruption throughout BSE and of our loved ones unlawful deaths. I know that many members of the campaign and ordinary public have also demanded his resignation. Kenneth Clarke allowed BSE material into our children’s baby food, school meals, the elderly meals in residential homes, colleges, universities and to feed our police force and armed service personnel. He allowed BSE material to be used in our vaccines….all the time knowing that BSE was a lethal pathogen to humans. Kenneth Clarke has put every family in the UK at risk of developing vCJD. Clarke could protect his own life and family and did so, we as ordinary members of the public never had that informed choice. Or the information he suppressed. Andrews last few days

Kenneth Clarke continues to abuse his position of power in our government…..and is once again standing up in the House of Commons pontificating about cuts to the legal aid system…This is not about protecting us or saving money for the British public but is about Kenneth Clarke’s and those responsible for BSE guarding their backs and the lies that killed my only son Andrew….

Hundreds of children have died due to Kenneth Clarke’s and those named and shamed on this website deliberate decisions….hundreds more individuals have faced horrific disablement and death…experts predict hundreds more will die…..thousands struggle every day with what one victim described to me as ‘A living death’…hundreds of UK children under the age of 15 have lost a mum or dad to vCJD…..the list of victims of vCJD is endless……

Kenneth Clarke is responsible for so many unlawful deaths …his deliberate measured decisions have exposed us all to BSE…. Every member of the British public over 13 has eaten at least 50 BSE infected meals……even strict veggies…..

If any of these facts are untrue I invite Kenneth Clarke’s lawyers to sue me…..

Clarke’s ageing dissipated air of overfed puffed out corpulence hides a man of cynical steel and despotic ego…desperate to keep the lid on his criminal acts….Clarke currently holds the reins of our judicial system. Where is the justice in this?

Monday 6th December 2010

Below is a published paper about yet another victim of vCJD this time in Taiwan, the man lived in the Uk between 1989 and 1997. So far I have been unable to ascertain when he exactly lived in the UK and when he started to develop symptoms. All of these Asian victims are important to map and define especially as they had lived, travelled or worked in the UK. These patients and others globally that I have been in contact with who obviously contracted the infection in the UK hold the key to understanding clusters, incubation periods and most importantly source of the infection. However precise information relating to these crucial events and victims infection are rarely published even though they are of public interest and concern,

My thoughts and understanding are with this mans family and friends may their god go with them…..

http://tinyurl.com/23a8a5t

Probable variant Creutzfeldt–Jakob disease in Asia: A case report from Taiwan and review of two prior cases

Chih-Wen Yang MD1,3,
Jong-Ling Fuh MD1,3,
Shuu-Jiun Wang MD1,3,*,
Jiing-Feng Lirng MD2,3,
Chih-Chao Yang MD4,
Shih-Jung Cheng MD5

Article first published online: 25 NOV 2010

DOI: 10.1111/j.1440-1819.2010.02151.x
© 2010 The Authors. Psychiatry and Clinical Neurosciences © 2010 Japanese Society of Psychiatry and Neurology

ABSTRACT

New variant Creutzfeldt–Jakob disease (vCJD) was first identified in the UK in 1996, and was causally linked to bovine spongiform encephalopathy. Herein we report the first case of vCJD in Taiwan: a 34-year-old man who had lived in the UK between 1989 and 1997. The patient presented with depression, irritability, personality change, painful feet and allodynia, followed by gait ataxia and cognitive impairment. Electroencephalograms did not show the typical appearance of sporadic CJD. The cerebrospinal fluid 14-3-3 protein immunoassay was negative. Brain magnetic resonance imaging revealed high signal lesions involving bilateral caudate nuclei, left lentiform nucleus, bilateral dorsomedial thalami and pulvinar on fluid-attenuation inversion recovery, T2- and diffusion-weighted imaging. Prion protein gene analysis showed homozygous for methionine at codon 129. The patient developed akinetic mutism at 16 months and died at 28 months after onset. The clinical presentation and neuroimaging findings were compatible with the vCJD cases reported since 1996, and met the World Health Organization Case Definition for probable vCJD. In this communication, we also review two other cases of vCJD in Asia. All three cases were assumed as imported cases from the UK because of the residential or travel history of the patients.

Wednesday 1st December 2010

Gianluca Sgueglia died aged 33 in Italy, his family and brother Antonio were led to believe by medical experts that Gianluca’s decline and untimely death was due to vCJD. Within months the Italian authorities changed their minds and now say Gianluca died of another form of CJD. The family believe that their son and brother died due to BSE infected material. They continue to fight against the Italian Government, for the right diagnosis. Because of their difficulties in gaining independent support the Sgueglia family are currently formulating a foundation/charity in Gianluca’s name which will support and help other families and will be free of any government influence and interference.

The Sgueglia family are suffering not only the loss of their loved one but also the trauma of fighting the authorities for official recognition, this is a common scenario that is happening across Europe including the UK and globally. Governments do not want to admit the extent and numbers of people that are succumbing to vCJD, the number of cases of those who have died and are dying of this UK man made manufactured disease are being manipulated to allay the public fears and to continue the cover-up that started here in the UK . Cases of sporadic CJD (naturally occurring form of the disease generally in people over 65) have tripled with cases as young as 20. This is in direct correlation to the exportation and consumption of BSE material. How many sporadic CJD cases are really vCJD?

I wish the Sgueglia family strength, and continued determination in their efforts to discover the truth…….

www.facebook.com/gianlucasguegliafoundation

Monday 29th November 2010

Here is a report from Bloomberg about a case of possible vCJD in Brazil. Not only is Brazil known for its own beef, the UK also exported and continues to export many products food and medicine to Brazil containing bovine material from UK herds.

http://www.bloomberg.com/news/2010-11-18/brazil-reports-first-possible-case-of-mad-cow-disease-in-a-person.html

Brazil Reports Its First Possible Case of Mad Cow Disease Variant in Human

By Lucia Kassai - Nov 18, 2010 8:37 PM GMT

Brazil, the world’s largest beef exporter, reported its first suspected case of Creutzfeldt-Jakob disease, which is known to be linked to a cattle illness known as mad cow.

The city of Campinas, in Sao Paulo state, was notified of the possible case on Nov. 12, the city’s health department said on its website. The city said there’s no transmission of the disease in Brazil.

Creutzfeldt-Jakob disease, an incurable human illness that destroys brain tissue, has been linked to eating meat from animals infected with bovine spongiform encephalopathy, known as BSE or mad cow.

Brazil’s beef exports totalled $4.12 billion in 2009, according to the Ministry’s of Agriculture website. The country has never reported a case of mad cow.

To contact the reporter on this story: Lucia Kassai in Sao Paulo at lkassai@bloomberg.net

To contact the editor responsible for this story: Carlos Caminada at ccaminada1@bloomberg.net

Tuesday 23rd November 2010

Here is a photo of just some of the protestors who attended the demonstration to mark international CJD day on12^th November. This photo was taken outside the Ministry of Health in Whitehall, Central London. This is the Government Department where as Minister of Health 1982-1985 and Health Secretary from 1988-1990 Kenneth Clarke made his ongoing and deliberate decisions that have wrecked so many lives and killed so many innocent people in the UK and within our global community. During BSE Kenneth Clarke made ongoing and deliberate decisions which allowed BSE infected material free reign into the food chain. Predominately the most infectious material Kenneth Clarke allowed to be used to feed our babies, infants and children and the most vulnerable in society including the elderly and hospital patients

Kenneth Clarke knew the lethal properties of BSE, he could and did protect himself and his family but did not protect the UK public, we were seen as superfluous to government policy, his career and shareholders profits.

During our time protesting outside the Ministry of Health, .Mothers that had lost their children to vCJD gave heartrending accounts of their child’s untimely and unlawful death……and demanded the resignation of Kenneth Clarke. As I told ITV and BBC news and journalists that gathered ‘ I am here today not just for my son Andrew, not just for all victims worldwide of vCJD but for the UK public and their families as the next victims could be any mothers son or daughter’.

Below is the letter I have received from the Prime Ministers Office in response to the campaigns petition delivered to Number Ten Downing Street on 12^th November 2010.

downing_st_lett_nov_2010

Thursday 18th November 2010

Here are some more photos of the campaigns protest during International CJD day on 12^th November. We started the demonstration outside Portcullis House where Agriculture Minister James Paice was debating about livestock and farming. Despite the demonstration having complete permission from Jon Morgan Superintendent of the Met I was stopped and questioned repeatedly by Police. I know this was due to various phone calls from Whitehall that was given by civil servants in the hope it would intimidate or lessen the demonstration. Fortunately the police were good natured and understanding and once they had said what they were told to…let us get on with it and in fact asked a lot of questions and took our leaflets. The Police on the beat and at Downing Street were extremely good natured and concerned about the campaign and what it has discovered.

However helicopters and other intrusions from Whitehall were present throughout., I am aware of a file about myself and activities within the security service and just hope they have photographed my good side.

After being filmed by both BBC and ITV we marched to Downing Street where we got a great deal of interest from the public with our banners, whistles and megaphones. Our many placards contained graphic and harrowing photos of our loved ones dying of vCJD as well as photos of John Gummer, Kenneth Clarke, John Major .and David Cameron.

After delivering the petition to Downing Street where we were accompanied by Conservative MP Dan Byles we demonstrated outside the Department of Health, Houses of Parliament. We laid a wreath for all victims of CJD across the globe outside the Ministry of Justice now Kenneth Clarkes offices and had two minutes silence, I then read out the names and ages of hundreds of victims of vCJD that I have in my possession and also made space and time for those that I have been unable to trace or remain in the shadows.

I like to thank all the mums and dads, brothers and sisters who came along on Friday I know how hard and distressing it was, but also know that you all found it helpful and at times inspiring. This was due to the wonderful response of the public from London taxi cabs, to police, students, tourists and ordinary people in the street who came over to support us and ask about the campaign. Photographs of the protest were beamed across the world by mobile phones and cameras with many people wanting to be part of what they said was an historic event.

Families that couldn’t be at the demonstration due to ill health, financial reasons or because it was just too distressing have written personal letters to David Cameron about their experiences and need for resolution and their concerns over future deaths through blood.

Ministry of Justice I am hoping as a bereaved father himself David Cameron at lasts opens his heart and the door of Downing Street to the campaign and its goals as we represent the ordinary man and woman in the street and their opinions and concerns should be heard.

The big society is made up of little families across the UK who are the backbone of this country and are a powerful force of individuals forming close knit communities. The Prime Minister should listen and heed our concerns before its too late……

Photo of Judith and her son Billy aged 2, Judith received a blood transfusion in Brighton in 2008 and was not informed that her blood bag had the disclaimer 'RISK OF ADVERSE REACTION INFECTION INCLUDING VCJD'

Outside the Ministry of justice with Indira ...mother from Bosinia currently nursing her son Irhad aged 23...(they have lived in London since 1992).

Monday 15th November 2010

On Friday 12^th November 2010 family members, siblings, friends and colleagues of victims of vCJD marched to Downing Street to mark International CJD day, we were accompanied by people from across the globe and all ethnic, religious groups and countries were represented.

Families that couldn’t be there wrote personal letters to the Prime Minister David Cameron which was handed in with the petition. Others provided interviews for their local radio and TV stations.

The response from members of the public and the media was very very positive. The police officers on the beat and armed police outside number ten were interested and supportive taking leaflets and wanting to know more, as members of the police force have died of vCJD. The security staff and workers at the Ministry of Health and Ministry of Justice were lovely and very concerned about the numbers of people that continue to die of vCJD as they recognized it could be their child or family members.

Dan Byles Conservative MP for Warwickshire accompanied his constituent Mr. Singh who lost his son Jorawar (aged 18) to vCJD.

During the protest, the MP walked with us to Downing Street and was filmed and photographed talking to family members. (see photo of Dan Byles and also families outside number ten).

Dan Byles Conservative MP asked me ‘What do you want? Another public inquiry?’

I said on behalf of the campaign and family members ‘No’…

A Public inquiry regarding vCJD has no teeth and is used by those responsible as their ‘GET OUT OF JAIL FREE CARD’ and as a means to cover lies and corruption; it’s expensive and has no use to family members, to victims or to members of the public. A public inquiry re vCJD is not sufficient or has the legal powers that we as families who have lost loved ones to vCJD demand and need for resolution. Christine with Dan Byles

This is what the campaign expects and demands:

A criminal investigation

Police inquiry

The resignation of Kenneth Clarke.

The criminal investigation and police inquiry to be carried out independently with no pressure or partisan influence from Whitehall or government departments and certainly no influence used by people affiliated or involved with any of those named and shamed on this website.

I am aware as I write this that Whitehall is monitoring this site and am very cautious about the sensitive investigations my team continues to conduct.

I also know that the ‘puppet masters’ and their minions of Whitehall continue to conduct their Machiavellian manoeuvrings….to hide the truth and bury the lies and corruption that created and enabled vCJD…..

They cant bury everything……as there are too many lies, falsehoods and too much corruption which will ultimately consume those responsible……

The doors that remain open to my team of investigators do so because government are unaware of many of our sources many of those that risk their careers and more to provide me with evidence and information.

Kenneth Clarke and Gummer and co have made a lot of enemies on their slippery road to further their careers…and there are many many people in the guise of their friends and colleagues that have been too only too willing to ‘spill the beans’……and ‘dish the dirt’……..

Below are just some of the links to the media coverage, I like to thank everyone that participated in the protest on Friday and for the thousands of supporters that continue to give their help, time and skills freely. My faith in the goodness of people is still strong as so many ordinary members of the public who have not been affected by vCJD continue to support the campaign and their steadfastness remains constant and ongoing. I like to thank the scientists, medics, researchers and all those in the background that continue to help in the fight for justice and the truth.

Thank you to the mums, dads, and brothers, sisters, family and friends of all the victims who joined me on the protest and especially to Indira currently nursing her beloved Irhad aged 23 ( I know how much it must have took to leave him and come on the demonstration) and little Billy aged 2, who came into Downing Street with us and represents the 130 children who have lost a mum or dad to vCJD.

I will be posting more details about the demonstration later this week.

‘NO NO WE ARE NOT SATISFIED, WILL NOT BE SATISFIED UNTIL JUSTICE ROLLS DOWN LIKE WATERS’

‘THE CROOKED PLACES WILL BE MADE STRAIGHT’ Martin Luther King

www.itv.com/meridian-west/march-on-downing-street19227/

www.wave105.com/Article.asp?id=2018239&spid=25629

www.demotix.com/news/506121/justice-cjd-victims-protesters-opposite-downing-street-london

www.portsmouth.co.uk/newshome/Portsmouth-mum-joins-march-to.6623088.jp

Friday 12th November 2010

PRESS RELEASE

10 DOWNING STREET, CENTRAL LONDON, WESTMINSTER

Friday 12^th November 2010, 1:45pm

INTERNATIONAL CJD DAY DEMO/PETITION DAVID CAMERON

GRIEVING FAMILIES DEMAND: JUSTICE AND ACCOUNTABILITY Baby Billy

Families who have lost loved ones to vCJD (the human form of mad cow’s disease) are marching on Downing Street today demanding justice for all victims and prevention of future and further deaths. To mark INTERNATIONAL CJD DAY parents, siblings, children as young as 2 years old, will be petitioning the Prime Minister and then holding a demonstration/memorial service outside the Ministry of Justice, which includes the laying of a wreath, with guest speakers and a debate.

Indira Rivzo from London, fled Sarajevo in 1992, she is currently nursing her 23 year old son, diagnosed vCJD in April, she said: “Irhad was about to graduate he was bright, healthy and intelligent. We came to England for a new life, now Irhad is unable to move, eat, or talk because he ate school dinners and had vaccines which the UK Government said was safe.”

Organiser, Christine Lord’s son, Andrew Black, died of vCJD aged 24. She said: “Hundreds have Andrew and Christine died. Hundreds more are predicted to die, thousands are affected and millions of us have been exposed to BSE. The campaign’s investigations raises serious questions regarding the Conservative’s handling of BSE, cover-ups, lies and corruption mean the public were never informed of the lethal nature of the infected material which went into baby food, school meals and vaccines.” She added: “vCJD is an avoidable UK man-made disease. We are here demanding justice, accountability, and to protect families across the UK. The government are still not putting the public’s health first. We are also challenging David Cameron why the development of blood screening tests for vCJD and treatments that can prolong life for victims of vCJD are being withheld and blocked?

Rose Smith’s son, Billy, died of vCJD aged 21 in January. She said: “I stopped feeding Billy beef because of BSE but when John Gummer came on TV and said it was safe I believed him and started feeding beef to my family again. All my Billy did was eat his Sunday dinner and now he is dead …” Billy and Rose

Mum of two Judith Hajdaraj (40) from Brighton, brought along her toddler Billy (2). She received blood transfusion at Royal Sussex Hospital in 2008, she said: “I was never warned that the blood I received could give me vCJD or that all blood bags/ components have had the disclaimer on: ‘RISK OF ADVERSE REACTION INFECTION INCLUDING VCJD’ since July 2007. Why wasn’t I told this? And why doesn’t the British public know what’s going on? Why is the government blocking blood screening tests? Is it because they don’t want to know the prevalence of vCJD in the population?

The petition contains many challenges for Cameron’s Government; accusations that the BSE Inquiry was used to ‘hide and conceal’ instead of ‘protect and reveal’. Campaigners also question Cameron’s ongoing allegiance with old Tories including Kenneth Clarke, Health Minister during the scandal. Questioning the cabinet’s independence as Peter Gummer (brother of John Gummer Minister of Agriculture during BSE) has given funds to the party and is President of Cameron’s constituency.

STATEMENT OUTSIDE NUMBER TEN DOWNING STREET/PETITION:

Christine Lord: “We want justice for all victims of vCJD here in the UK and across our global community, accountability, responsibility and justice. We want to prevent further deaths. To do that we need answers and demand action from the Prime Minister: -

Why are cases of vCJD not being recorded correctly on government statistics? Why have cases of sCJD (sporadic VJD) and dementia tripled since BSE entered the food chain?

Why is the Phillips Inquiry allowed to be used by culpable officials and ministers as their ‘GET OUT OF JAIL FREE CARD’. Why were witnesses rehearsed, questions known and answers given by the very people it was supposed to investigate? Why, when scientists and ministers knew from the earliest stages that a ‘new and lethal pathogen in cattle had been diagnosed’, was this material allowed unchecked into the human food chain for over a decade?

If the SBO (Specified Bovine Offal ban) in 1989 removed the threat of BSE from human consumption, why do young people in their late teens early twenties continue to die of vCJD 2010?

Why are treatments that can prolong life and developments of treatments being stalled, blocked and withheld from victims of CJD? Why do the government want victims of vCJD to die rapidly without interventions?

Experts predict hundreds of deaths from vCJD in the coming years, especially from the most common genotype MV (52 per cent of population), most blood donors come from this group what is the Prime Minister doing about protecting our blood supply…..now??

One of the current victims of vCJD is dying due to a blood transfusion received in 2003 after leucodepletion (filtering). Filtering does not work…yet blood screening tests are being repeatedly blocked by Whitehall. Is it because the Government and DOH do not want to know prevalence of vCJD in the UK population? Top scientists estimate “One in a thousand of the population is probably carrying vCJD” (John Collinge BBC1 May 2008)

Currently a diagnostic screening test is being used secretly by the DOH. Why isn’t this public and available to families who have been affected by vCJD and the wider population? ATTACHED PHOTOS OF: victims, Andrew Black aged 24 (Mum Christine) Billy Smith aged 21 (mum Rose). Toddler Billy. Hajdaraj.

12^TH November 2010

Dear Prime Minister,

JUSTICE, ACCOUNTABILY, RESPONSIBILITY FOR VICTIMS OF VCJD

Prevention of future and further deaths of vCJD through Blood supply/products

International CJD Day

I am writing to you not only as Prime Minister but as a father and one who has also lost a child. My son Andrew died of vCJD, my only son took four long days to die as his fit young body fought to live whilst his brain had been systematically destroyed by the human form of BSE. As a mother who lost her 24 year old talented fit only son to vCJD as organizer of the petition, as a mother speaking for all parents across the UK who want to make sure their children don’t suffer the horrific fate my son died; I am asking you on behalf of the hundreds that have died., the hundreds possibly thousands that will die, the thousands that live with the risk they could develop vcjd at any time due to blood and the millions of UK citizens that have been exposed to BSE to help us and act on our concerns.

We are petitioning you today not just for our lost loved ones but to protect every family in the UK from the ongoing destruction of BSE. a man made manufactured disease which puts everyone over 13 at risk of developing vCJD.

PETITION:

We want justice for all victims of vCJD here in the UK and across our global community. Today on International CJD day we represent not only people in the UK but our global family, whose representatives from the Jewish, Muslim, Christian, Buddhist, Sikh, Hindu and multi faith communities and cultures across the UK and globally have formed an alliance, all of these communities have been affected by vCJD. We demand accountability, responsibility and justice. We also want your help to prevent further and future deaths of vCJD through blood contamination.

The current Coalition Government must put clear blue water between the Conservative Party of the 1980s, 1990s, its policies and ministers which are culpable. .

We understand with your close connections to Margaret Thatcher, Kenneth Clarke and the fact that Peter Gummer head of Huntsworth (brother of John Gummer) is also a fund raiser for your political party and President of your constituency party, that independence may be difficult. We are asking you as Prime Minister to put these allegiances to one side and to let the truth shine through…..

We need answers, transparency and action:

Why is the true number of cases of vCJD not being recorded correctly on government statistics? Why have cases of sCJD (sporadic) tripled since BSE entered the food chain?

Why is the Phillips Inquiry allowed to be used by culpable officials and ministers as their ‘GET OUT OF JAIL FREE CARD’? How can the Phillips Inquiry be independent and true when it was staged by the very people it was supposed to investigate?

If the SBO Specified Bovine Offal ban in 1989 removed the threat of BSE from human consumption why do young people in their late teens early twenties continue to die of vCJD 2010?

Why are treatments that can prolong life and developments of treatments being stalled, blocked and withheld from victims of CJD? Why do the Government want victims to die rapidly without interventions?

One of the current victims of vCJD is dying due to a blood transfusion received in 2003

Their blood had been lecudepleted (filtered). Filtering does not work, its not a safe and costs millions. Yet blood screening tests are being repeatedly blocked by Whitehall… is it because the Government and DOH do not want to know prevalence of vCJD in the UK population? Top Scientists estimate’ One in a thousand of the population is probably carrying Vcjd’ John Collinge BBC1 May 2008

Currently a diagnostic and screening test is being used secretly by the DOH why isn’t this public and available to families who have been affected by vCJD and the wider population?

I hope as Prime Minister, as a parent and father, you can help the campaign and families who have been affected by vCJD to get the resolution they now seek, and to help us keep other families free from the heartbreak we live with every minute of the day, knowing our loved ones need not have died.

Yours sincerely,

Christine Lord (mother of Andrew)

Justice for all victims of vCJD, and on behalf of all families affected by CJD across the UK and globally.

Tuesday 9th November 2011

Below is the link to watch video footage of Irhad a young man of 23 years old who is suffering from vCJD. He is now semi conscious and lays in bed nursed 24/7 by his devoted mother.

http://www.youtube.com/watch?gl=GB&v=02LXrQF4cqk

Irahd arrived in this county aged 5 years old from war torn Bosnia looking for peace and a new life with his mother Indira. Now he is dying of vCJD……

His mother Indira told me ‘We escaped Sarajevo and all its problems to come to the UK for a new life. I qualified as an accountant and Irhad was about to graduate. We gave a lot back to the UK and have always worked very hard.’ She continued ‘Now my son, my child can no longer walk, talk and hardly move….. My baby is so ill…..I thought the troubles we faced in Sarajevo were bad but this is far far worse, I am heartbroken to see my fit young healthy son so disabled because he ate or ingested something the UK government said was safe.’ She concluded ‘ If we had stayed in Bosnia my son would be healthy and not fighting to live, why has this happened to my lovely son, why hasn’t anyone been punished’ Dean_now

Indira lost her brother in the wars and her mother died a few years ago, Irhad is her life and now she faces the torment of nursing him through the horrific brain wasting disease that is vCJD……

Friday 12^th November is International CJD and groups of families will be marking this day across the world. I and many families and supporters will be in central London demonstrating and holding a memorial service for those who have been unlawfully killed by an acquired and totally preventable disease.vCJD……

Help us to protect your families, help us to get justice for our loved ones…for further details how you can help….contact me at mschristinelord@aol.com Edward

With this blog is just a few photos of the many predominately young people who have died of vCJD recently…there are many more…..some families remain too traumatized to speak out, some families too broken ….the campaign and its supporters continue to be their voices and the voices of the UK public and global community…because next week, next month next year it could be anyone’s son or daughter afflicted by vCJD……

Irhad Photos Billy Smith Died 16^th January 2010 aged 21

Dean Burrell Aged 25 died June 2010

Edward Peduzie aged 25 died Oct 2009

Irhad aged 23 one of the current vCJD victims with his mum Indira .. .

Unfortunately many more have died and many more will die…………………..

Friday 5th November 2010

There are many theories about how long a person can ‘incubate’ vCJD once they have been exposed to BSE toxic material. Theories range from 5 years to 40 years. At one time experts believed a person ingested BSE material and within a very short period developed vCJD. Many families are still cautious about the length of some of these incubation periods….I remain open-minded………I believe that some of the information given to the general public about BSE/vCJD are ‘red herrings’ deliberately put there to deceive, mislead and hide the real truth. Also a lot of information given to families affected by vCJD has had a spin put on it and a lot of terrible and damaging game playing goes on with traumatised families. When a person is first diagnosed and has a visit from the CJD unit they are often met with the words ‘ your son/daughter has vCJD because you fed them cheap meat’….This terrible and disgustingly inappropriate statement is used to heap even more guilt on grieving parents leaving them unable to look at the real culprits….John Gummer, Kenneth Clarke and co……

Nothing is straightforward, open or transparent regarding vCJD/BSE. The stakes are high as the likes of John Gummers and Kenneth Clarkes freedom and careers rest on the fact that the corruption that created BSE continues within the DOH DEFRA and the establishment.

So I continue to gather evidence and listen to every theory and idea, whilst keeping my own judgements and being guided by my common sense and moral compass. I have also along the way discovered wonderful people and supporters who help me every day, also sources right at the heart of the establishment who offer me wonderful nuggets of evidence and information.

What we do know is that at least two young people aged 12 developed symptoms and subsequently died of vCJD.

So the maximum incubation period for those individuals has to be 12 years.

We also know that a Japanese man visited the UK for just 24 days in late 1989/ early 1990 and eleven and half years later he started to develop symptoms of vCJD.

I have been informed by top scientists who deliberately infected cattle with BSE that they found higher the dose of BSE infected material fed orally to cows the shorter the incubation period. Experts found if a cow was given a huge dose of BSE they would die very very quickly. This is probably why so many of the victims of vCJD are young. They were exposed to higher doses of BSE infected material when they were most vulnerable as babies, infants, young children. The BSE material that Clarke and Gummer and their cronies sanctioned as to be ‘fit for human consumption’…was toxic and those ministers knew it…. .

There has been a multitude of research within BSE and vCJD but very little real facts given or exposed to the public. Many of these research projects which Whitehall and government scientists have been and continue to be actively engaged remain ‘top secret’.

Farms and buildings up and down the UK have been used to experiment on animals by infecting them with BSE..and yet only a trickle of this research has been put in the public domain. Also this research once again is managed by DEFRA (MAFF) so is open to manipulation and government policy intervention. Scientists who have told me about these experiments have met with me in out of the way places, frightened and scared. Why?

If the government have nothing to hide!

Again and again information about BSE were it went, who ate it, why victims develop it and what triggers it in humans are being shielded and hidden from public view and examination.

Unfortunately in the next months, years and decades hundreds more people will die and there is the potential for tens of thousands to be affected. The general public are being fed false reassurances and with Kenneth Clarkes huge press consortium, stories about vcjd/bse are being manipulated or deleted.

I am acutely aware that Whitehall and its minions view this website and that at times I have been under surveillance…

Never has freedom of speech and freedom of scientific research and the press been more at risk…….

Tuesday 2nd November 2010

On Tuesday 26^TH October 2010 I attended the Third Public Meeting of SABTO. Safety of Blood Tissues and Organs, at 10am in Central London.

The title of the meeting was ‘Organ Transplantation- Benefits of Higher Risk Organs’.

SABTO are a committee that recommend health implementations and advise the Government on the safety of blood tissues and organs. They have raised concerns in the past regarding vCJD and secondary infection via blood products and other organs. From July 2007 all blood bags and components in the UK carry the disclaimer ‘RISK OF ADVERSE REACTION INFECTION INCUDLING VCJD’

Pathologist Professor Joanne Martin told me ‘We are hoping to have the same warning on donated organs too’…..

Although this was a public meeting due to the early timing, childcare issues, health problems, financial difficulties it meant that only a handful of the public were present.

Most of the audience were experts whose salaries are paid directly or indirectly by the Department of Health or employees of various government departments. Other delegates were there on expenses paid by some group or charity. I heard the chatter as they discussed their full English breakfast. ..all paid for by the taxpayer!

My attendance at SABTO is always one that the powers that be dislike and my reception at the meeting was very frosty and distinctly cold. I was not greeted by anyone except Elwyn Nicol who received a heart transplant several years ago and is a member of SABTO. Thank you Elwyn for respecting me as a person, as Andrews mum and a campaigner, you are a gentleman.

Lorna Williamson Head of the Transfusion Service, Gilliam Turner Co-Ordinator of the CJD Network, Professor Richard Knight CJD Unit, John Forsythe Chair of SABTO and many other delegates who know and have met me several times,

Not one of these individuals gave me a respectful hello or proper acknowledgement.

It was down to me to approach all the experts and delegates with my campaign leaflets, concerns and blood safety handout…and I was given very short shrift…. …they just didn’t want to talk to me!

This is the price I pay for speaking out and being the voice of the public and the millions of people who could not be at the meeting, where the beginnings of life and death decisions were being formulated ……

As regular readers of this blog know I have been accepted to donate blood and use to carry an organ donor card…. but have withdrawn from these options until a blood screening test for vCJD is implemented. Other family members who have been life long blood donors have been told they can no longer give blood. Across the UK there is a very curious lack of cohesion and clarity regarding the safety of our blood and organs.

The meeting was to discuss the shortage of organs available for transplant. Experts in the field of transplantation, top surgeons, pathologists, and people connected with organ retrieval debated on the merits of using ‘higher risk donors’, to make up the short fall.

These included Organs from patients who had Central Nervous System Tumours.

Below are bullet points of the meeting….

· Recently individuals who have been suffering from ME chronic fatigue syndrome have been banned from giving blood, no ME patients were able to make the meeting.

If there is a blanket ban on ME patients why is it so loose and unclear for families who have lost loved ones to vCJD?

· Only a handful of the public at a public meeting

One attendee raised the fact that the meeting time was discriminatory to people on a low income (expensive time to travel), to parents (as it was half term) and the fact that many people with health difficulties would find it difficult to cross town that early in the morning.

Many of the delegates were employed by the Department of Health or other government organisations or groups. Some had spent the night before in hotels and were being paid to be there.

· SaBTO is thinking of using people who have had brain cancer as organ donors and to open up the numbers of people that can give organs because there is a shortage.

Note: It seems strange that ME patients can’t give blood and yet they are considering taking organs from an individual who has had cancer of the nervous system and transplanting them into a chronically sick person as a chance of life.

· One mother was told she must come off the organ donor register because her daughter died of vCJD.

Head of the blood transfusion service, Lorna Williamson: “… parents and family members of victims of vCJD can’t give blood because they might have eaten the same food as the victim.”

One attendee noted that their local blood service said that parent of vCJD could give blood and so the information is confused.

· Families of vCJD victims are seen as ‘at risk’ and this risk would have to be evaluated when it comes to giving their organs to recipients.

This raised the suspicion with some that organs and blood taken from vCJD victims’ families may well be taken but are being used for research and not going into the donor general pool.

Attached is a letter sent to June Richer who lost her daughter Kate (aged 22) to vCJD, she has been refused a organ donor card. Yet when I put this to John Forsythe at SABTO he told me ‘ you can carry and organ donor card’

However later I was told by another expert ‘off the record’ that even if parents and siblings of vCJD victims are accept on the organ donor registrar, it’s when the organs are retrieved that an ‘at risk’ status might be decided. If this is the case the organs would not be used for transplantation, if this happened the organs could be used for research…...

I have been told that blood and organs from vCJD victims are worth millions of pounds.

In research and would hazard that organs from family members and their blood are also worth quite a bit too…

Friday 29th October 2010

Although this video on YouTube was put together in 2003 it shows yet more of the hundreds of victims who have died of vCJD and continue to die in 2010.

Video footage such as this is so powerful because it shows the people behind the statistics that the government continues to manipulate.

It shows that victims are just like anybody else’s brother, sister, mother, father, daughter or son ……and it highlights that the next victim could be anyone’s family member…

Please continue to log on and support our campaign. vCJD killed my Andrew but it also affects everyone in the UK ….as we have all been unwittingly exposed to BSE….

http://www.youtube.com/watch?v=TBpGK3CShvc

Friday 22nd October 2010

In 2010 John Gummer aged 70 decided to step down from being an MP, he was duly rewarded for his corruption throughout BSE by being made a member of the House of Lords.

His brother Peter (67) is head of PR firm Huntsworth Group who have a number of lobbying organisations under its wing, many of whom influence government policy. Peter Gummer is also a member of the House of Lords and is not only President of Conservative Prime Minister David Cameron’s constituency party but has given significant funding to Cameron and his political party.

Is this why David Cameron refuses to acknowledge, meet or address the numbers of people that have and continue to die of vCJD? Kenneth Clarke

Is this why every company who has developed blood screening tests for humans and the most sensitive BSE tests for cattle are blocked and sidelined?. Is this why treatments such as pentosan which appears to prolong life of victims of CJD and could be the beginning of radical and positive treatments for the disease is withheld from patients?

The corruption lies and cover-ups that killed my Andrew continues to weave its intrigue within our government and its Machiavellian evil to permeate our democracy including freedom of speech and freedom of the media.

Meanwhile ordinary innocent citizens in the UK and across the globe are currently dying of vCJD….whilst John and Peter Gummer with the assistance of Kenneth Clarke Justice Minister ( the irony of that role makes me weep)… form what they believe is a impenetrable alliance with our current Prime Minster and his cabinet…….

Tuesday 19th October 2010

On Thursday 14^th October 2010 there was a debate and vote in the House of Commons regarding contaminated blood, a scandal that has killed hundreds of UK citizens. A third of these individuals were young children who were injected with blood products that have led them to develop the terrible, life-shortening and disabling health conditions of HIV and/or Hepatitis C. Many of these young people and individuals now have the additional worry that they could develop vCJD since it is now known that their medicine was sourced from blood donors who went on to die of the human form of mad cow disease.

Andy Slaughter MP (Labour for Hammersmith and Fulham) was talking on behalf of his constituent Andrew March - who regular visitors to this website will know - is a fellow campaigner; a haemophiliac who received the most vials of Factor VIII from a blood donor who went on to die of vCJD.

Andy Slaughter said:

"The easiest way for me to summarise his predicament and what he has done is to read from a letter that he sent to me on 23 July. He said: “I was one of the young children at the time of the AIDS outbreak, and I had to cope with being told that I had HIV at the age of 9. It was extremely difficult to deal with back then—and the devastation was compounded by the stigma. Before that, I had already been ill from Hepatitis B, again, from blood products because of my haemophilia condition. By 1992, whilst I was studying at the Royal College of Music on a 4-year degree, I was informed that I had also been exposed to hepatitis C, and only 5 years later, I was given another blow when I was informed that I had been exposed to two batches of Factor VIII blood products taken from a donor who later went on to develop vCJD. I had been treated with over 110 bottles of this vCJD-implicated material being injected directly into my bloodstream.” "

I’d like to thank Andrew March for all the hard work he has done in raising awareness around vCJD and the transmission of this pathogen through blood and other products. The legal battle he has fought and won and battles he continues to fight are all a natural extension of his ongoing belief in the truth and justice. Andrew March, as Andy Slaughter said, is ‘a remarkable man’ and I count him as not only a fellow supporter but also as my friend. Thanks Andrew for your wisdom and integrity and for your helping hand during some of the darkest days of my life. I appreciate your intellect, your tenacity and meticulous application to our investigations.

It’s a pity that the likes of John Gummer and Kenneth Clarke didn’t have an ounce of your integrity when they made those deliberate and corrupt decisions which have killed hundreds and affected thousands and which continue to threaten the lives of millions.

Thank you my friend……Christine x.

Thursday 14th October 2010

As the leaves on the trees turn to gold and the days become shorter the dying of every summer reminds me of Andrews last days….as autumn turned to winter my son slowly disappeared.

Each week leading up to the anniversary of Andrews death in December is a reminder of those terrible days when my son became increasingly disabled and unable to remember. Dementia in an elderly person is heartbreaking in a young guy of 23 its heart stopping

I will never forgot those days, weeks and months their terror for my son, their horror for me his mum.. the disbelief that this could be happening…it did…and has……

I remember cuddling Andrew one night before he went to sleep and him saying ‘Trouble is mum I wont remember any of this in the morning’…… And also Andrew saying to me ‘Nite nite see you in the morning’. And me not being sure Andrew would survive the night…….those are the tears and experiences I live with every day…….these are the memories I have which keep me determined and tenacious……

With this blog is a photo taken of my Andrew in Spain September 1994 he is about 12 year old. He looks happy, healthy and full of life…according to experts he may already have ingested the BSE material which would kill him in 2007….……

Friday 8th October 2010

Below are the listings of just some of the public bodies that David Cameron will be scrapping.

Whilst I understand that there has been wastage and public money needlessly spent on quangos and committees….I find it curious that so many public bodies that are watchdogs for public health, food and medicine are being scrapped. Many of those committees listed below have had significant input into vCJD/BSE and its threat to public health.

Once again by disbanding these specific advisory committees and getting rid of watchdogs that keep an eye on government policy and decisions the Conservatives are hoping the ‘stink of BSE/vCJD will be pushed under the carpet…the terrible legacy of Thatcherism and its government during the 1970s. 1980s and 1990s will be forgotten…..

Cameron is a ‘true blue Tory’ whatever his words to the UK public, his first and foremost interest are in the shareholders and financiers that make the money!

Once again public health and safety of the ordinary working man or woman comes way down in the list of priorities….

http://www.telegraph.co.uk/news/newstopics/politics/8021739/Quango-cuts-177-bodies-to-be-scrapped-under-coalition-plans.html

Daily Telegraph is reporting 177 public bodies in the UK that will be scrapped (or merged?) by Cameron. Listed below are a few that caught my eye:

::Advisory Committee on Dangerous Pathogens
:: Advisory Committee on the safety of Blood, Tissues and Organs
:: Advisory Council
:: Animal Welfare Advisory Committee
:: Committee on Carcogenicity of Chemicals in Food, Consumer Products and the Environment
:: Committee on Mutagenicity of Chemicals in Food, Consumer Products and the Environment
:: Farm Animal Welfare Council
:: Human Tissue Authority
:: Joint Committee on Vaccination and Immunisations
:: Royal Commission on Environmental Pollution
:: Spongiform Encephalopathy Advisory Committee
:: Veterinary Residues Committee

Full list here - http://www.24dash.com/news/housing/2010-09-24-Full-list-of-public-bodies-to-be-scrapped#comment

Monday 4th October 2010

Irhad Rizvo is 23 years old and one of the current victims of vCJD, and is now fighting for his life’

Irhad and his mother Indira fled from war torn Sarajevo in 1992 to the UK, hoping for a happy and peaceful life. Irahd is now desperately ill due to the lethal pathogen that was allowed into our food and medicine chain. His mum Indria has asked me to post this blog on Irhad’s behalf.

Indria said ‘ Irahad is a son to be proud of, he was in his third year at university in London and held a pilots licence. He was intelligent, happy and a wonderful son with a great future ahead of him. Now my son is so terribly ill and I am heartbroken’.

She added ‘I can’t believe this has happened to my fit healthy young son…… ‘

Irhad loved playing football every Friday night with his friends, was a talented drummer and guitarist. Since his diagnosis in April he has lost control of his actions, is now unable to talk and his mother cares for him 24/7.

Indira and Irahd came to the UK to be safe to forge happy lives and careers. Indira qualified as an accountant and Irhad was hoping for a career in the aviation industry. Mother and son because of their own experiences also volunteered their time to humanitarian organizations.

Once again another life has been wrecked and future stolen…once again I have listened to a mother’s heartbreak and tears…..

My thoughts and prayers are with Indria and Irhad…

Wednesday 29th September 2010

It would appear the corruption and cover ups that created and caused BSE and its lethal pathogen vCJD continue to weave its web of intrigue and lies. Its firmly established in our current right wing government this is affecting the cabinets decisions regarding the UK publics health and safety.

Whitehall's officials, minions. spin doctors, press office and civil servants are also trying to make it as difficult as possible for victims of vCJD and their families to seek resolution and justice…..

Lord Chadlington (see The Times article below)

In other words Peter Gummer brother of John bank rolls David Cameron and the Conservative party. My sources tell me that Peter Gummer is also involved heavily in David Cameron’s constituency business. Behind the scenes the Tory cronies and its spider’s web of officials who created and caused bse/vcjd are calling the shots…….

This is why our Prime Minister is too afraid to meet with parents and families affected by vcjd, this is why David Cameron’s officials are sidelining and disbanding groups associated with food, blood and public safety.

This is why Kenneth Clarke was given the job of Lord Chancellor….

This is why John Gummer was made a Lord…….

David Cameron has taken the Judas silver to become Prime Minister…..he has accepted money from people who now manipulate and control our cabinet and governments decisions…he has accepted money and support from people who have unlawfully killed hundreds of innocent people…….

David Cameron is a family man…but it would appear the bright lights of becoming Prime Minister meant he has sold his soul to the ‘devil’….and in doing so has compromised his morals and personal integrity…….

This is why the corruption and culture of secrecy that unlawfully killed my Andrew and hundreds of other innocent citizens continues to have a strangle hold on democracy, free speech and justice…..

Beware Gummer Clarke and co your corruption and wrong doings are coming to the surface and a tidal wave will engulf you and your careers and livelihoods…..which will shake the very foundations of the Government….you are the architects and enablers of this……your greed corruption has killed hundreds affected thousands and put millions of people UK and worldwide at risk of developing vcjd….

…Shame on you all………………….

The Times - January 30, 2009

David Cameron ally Lord Chadlington primed private equity leaders before inquiry

Steve Bird and Sam Coates

One of David Cameron’s closest allies has admitted training four private equity leaders before they gave evidence to a highly charged Commons inquiry.

Lord Chadlington, who bankrolled Mr Cameron’s leadership bid, helped senior figures from Permira, Kohlberg Kravis Roberts, 3i and Carlyle to prepare for an appearance before the Treasury Select Committee on June 20, 2007. The peer, a key player in the public relations world, having founded Shandwick, had declared work for the private equity industry in the Register of Lords’ Interests but did not lodge a contract for this work with the House of Lords, as is required.

Under the Lords Code of Conduct, peers must register “any consultancy agreement under which Members of the House provide parliamentary advice or services”. The rules say peers must deposit a copy of any such agreement, and the salary received by Members for advice in relation to parliamentary matters, with the registrar so that details are available for public inspection. The peer, who sold Shandwick in 1998, said no such contract existed in the form specified under the rules. His company, Huntsworth, was paid about £30,000 for the work, which he provided in his capacity as chief executive. He did not receive a specific fee for his involvement. When contacted by The Times, however, he acknowledged that the rules were confusing and named his four private equity clients.

Lord Chadlington, whose brother is the MP John Gummer, is one of three peers with parliamentary consultancies who did not lodge a contract with the registrar. In this case, the registrar has no powers to demand the information on Parliamentary clients, salary and terms of engagement if “contracts” do not exist as specified in the code of conduct. Yesterday Baroness Royall, the Lords leader, met with John Yates, Assistant Commissioner of the Metropolitan Police, who confirmed they were looking at the cases of Lord Taylor and Lord Truscott.